Advisory Committee on Heritable Disorders
in Newborns and Children
Upcoming Meeting
February 11 – 12 | Webinar
Agenda: Thursday, February 11, 2021 from 10:00 AM – 2:25 PM Eastern Time
|
TIME |
TOPIC |
|
10:00 AM – 10:15 AM |
|
|
10:15 AM – 11:15 AM |
Processes for the Review of Conditions on the Recommended Uniform Screening Panel (RUSP) |
|
11:15 AM – 11:55 AM |
Condition Nomination Form |
|
11:55 PM – 12:10 PM |
Consumer-Friendly Guidance Materials |
|
12:10 PM – 12:40 PM |
Break |
|
12:40 PM – 12:55 PM |
Public Comment |
|
12:55 PM – 2:25 PM |
Continuity of Operations Planning (COOP) and COVID-19 |
|
2:25 PM |
End of Day 1 |
Workgroup Meetings: Thursday, February 11, 2021 from 2:40 PM – 3:25 PM Eastern Time
|
2:40 PM – 3:25 PM |
|
Agenda: Friday, February 12, 2021 from 10:00 AM – 1:00 PM Eastern Time
|
TIME |
TOPIC |
|
10:00 AM – 10:10 AM |
|
|
10:10 AM – 10:20 AM |
Education and Training Workgroup Update |
|
10:20 AM – 10:30 AM |
Follow-up and Treatment Workgroup Update |
|
10:30 AM – 10:40 AM |
Laboratory Standards and Procedures Workgroup Update |
|
10:40 AM – 10:55 AM |
Discussion: Workgroup Ideas |
|
10:55 AM – 11:10 AM |
Break |
|
11:10 AM – 12:40 PM |
Innovations in Long-Term Follow-up |
|
12:45 PM – 1:00 PM |
New Business |
|
1:00 PM |
Adjourn |
Note that the Committee will not vote on a proposed addition of a condition to the RUSP. Agenda items are subject to change as priorities indicate.
The final meeting agenda will be available two (2) days prior to the meeting.