Advisory Committee on Heritable Disorders in Newborns and Children
Upcoming Meeting May 13-14 | Webinar
A final agenda will be posted at least 48 hours prior to the meeting.
Agenda: Thursday, May 13, 2021 from 10:00 AM – 1:45 PM Eastern Time
TIME |
TOPIC |
10:00 AM – 10:15 AM |
|
10:15 AM – 10:45 AM |
Continuity of Operations Planning (COOP) and COVID-19: Committee Discussion |
10:45 AM – 11:45 AM |
Association of Maternal & Child Health Programs (AMCHP): Coronavirus Aid, Relief, and Economic Security (CARES) Act - Newborn Screening Telehealth Activities |
11:45 AM – 12:15 PM |
Public Comment: General |
12:15 PM – 12:45 PM |
Break |
12:45 PM – 1:15 PM |
Mucopolysaccharidosis II (MPS II) Nomination Summary |
1:15 PM – 1:45 PM |
|
1:45 PM |
End of Day 1 |
Agenda: Friday, May 14, 2021 from 10:00 AM – 1:25 PM Eastern Time
TIME |
TOPIC |
10:00 AM – 10:10 AM |
|
10:10 AM – 10:40 AM |
Overview of the National Survey of Children’s Health |
10:40 AM – 11:10 AM |
Public Comment: Review of the Evidence Review Process |
11:10 AM – 11:40 AM |
Break |
11:40 AM – 1:10 PM |
Newborn Screening Workforce: Short- and Long-Term Follow-up |
1:10 PM – 1:25 PM |
New Business |
1:25 PM |
Adjourn |