Advisory Committee on Heritable Disorders in Newborns and Children

Upcoming Meeting May 13-14 | Webinar

A final agenda will be posted at least 48 hours prior to the meeting.

Agenda: Thursday, May 13, 2021 from 10:00 AM – 1:45 PM Eastern Time

TIME

TOPIC

10:00 AM – 10:15 AM

  • Welcome
  • Roll Call
  • Opening Remarks
  • Committee Business

10:15 AM – 10:45 AM

Continuity of Operations Planning (COOP) and COVID-19: Committee Discussion

10:45 AM – 11:45 AM

Association of Maternal & Child Health Programs (AMCHP): Coronavirus Aid, Relief, and Economic Security (CARES) Act - Newborn Screening Telehealth Activities

11:45 AM – 12:15 PM

Public Comment: General

 12:15 PM – 12:45 PM

Break

12:45 PM – 1:15 PM

Mucopolysaccharidosis  II (MPS II) Nomination Summary

1:15 PM – 1:45 PM

  • Committee Discussion
  • Vote on whether or not to move MPS II forward to full evidence review

1:45 PM

End of Day 1

Agenda: Friday, May 14, 2021 from 10:00 AM – 1:25 PM Eastern Time

TIME

TOPIC

10:00 AM – 10:10 AM

  • Welcome
  • Roll Call

10:10 AM – 10:40 AM

Overview of the National Survey of Children’s Health

10:40 AM – 11:10 AM

Public Comment: Review of the Evidence Review Process

11:10 AM – 11:40 AM

Break

11:40 AM – 1:10 PM

Newborn Screening Workforce: Short- and Long-Term Follow-up

1:10 PM – 1:25 PM

New Business

1:25 PM

Adjourn