Advisory Committee on Heritable Disorders
in Newborns and Children

Upcoming Meeting
February 11 – 12 | Webinar

 

Agenda: Thursday, February 11, 2021 from 10:00 AM – 2:25 PM Eastern Time

TIME

TOPIC

10:00 AM – 10:15 AM

  • Welcome
  • Roll Call
  • Opening Remarks
  • Committee Business

10:15 AM – 11:15 AM

Processes for the Review of Conditions on the Recommended Uniform Screening Panel (RUSP)

11:15 AM – 11:55 AM

Condition Nomination Form

11:55 PM – 12:10 PM

Consumer-Friendly Guidance Materials

12:10 PM – 12:40 PM

Break

12:40 PM – 12:55 PM

Public Comment

12:55 PM – 2:25 PM

Continuity of Operations Planning (COOP) and COVID-19

2:25 PM

End of Day 1

 Workgroup Meetings: Thursday, February 11, 2021 from 2:40 PM – 3:25 PM Eastern Time

2:40 PM – 3:25 PM

  • Education and Training Workgroup
  • Follow-up and Treatment Workgroup
  • Laboratory Standards and Procedures Workgroup

Agenda: Friday, February 12, 2021 from 10:00 AM – 1:00 PM Eastern Time

TIME

TOPIC

10:00 AM – 10:10 AM

  • Welcome
  • Roll Call

10:10 AM – 10:20 AM

Education and Training Workgroup Update

10:20 AM – 10:30 AM

Follow-up and Treatment Workgroup Update

10:30 AM – 10:40 AM

Laboratory Standards and Procedures Workgroup Update

10:40 AM – 10:55 AM

Discussion: Workgroup Ideas

10:55 AM – 11:10 AM

Break

11:10 AM – 12:40 PM

Innovations in Long-Term Follow-up

12:45 PM – 1:00 PM

New Business

1:00 PM

Adjourn

Note that the Committee will not vote on a proposed addition of a condition to the RUSP.  Agenda items are subject to change as priorities indicate.

The final meeting agenda will be available two (2) days prior to the meeting.